You get what you pay for, in a sense. How would the public respond to a one-time cure being sold for more than the total lifetime cost of treatment? Not well, but the thing is that responding like that is effectively expressing a preference for the lifelong treatment.
It’s not an imaginary scenario. For example, look at Sovaldi, the $84,000 hepatitis C cure. That’s less than the total cost of long-term treatment but it didn’t exactly make Gilead popular.
sovaldi is priced like this because they can, once it goes off patent price will drop significantly, drop one zero at least. japanese price is 300$ because govt negotiated it and covers most of it (99%). price for egyptian govt is 900$
It costs enough that it was featured at DEFCON this past year.
Four Thieves Vinegar Collective did a presentation where they made their own hep-c medication for a few hundred bucks + equipment.
Here is their website for those interested Link. But be warned, these guys very much have crossed a line in regards to IP law and general medical saftey practices. Governments do not care if your trying to make insulin or meth, they just see a mad scientist making drugs, and these nerds intend to make it a fight.
four thieves do not include any quality control, and plugging a jar to arduino does not grant you expertise needed. they rely heavily on intermediates access to which can be restricted pretty badly, and pricing of these is plain wrong because their scraper mixes up weights of amounts sold. frankly i doubt they made it at all, and any of these syntheses has great potential of killing people who try to do it. take from a dude who sits in medicinal chemistry for 30+ years now https://www.science.org/content/blog-post/anarchist-drugs-again
if you can get their procedures, i’d like to review them because the way they make these, i guarantee there will be incredible footguns included
the other big thing is that for most with chronic illnesses, the public isn’t looking, nor do they care, if i had the money, i would try anything, but i hardly leave my house and i can’t afford to work, so i’ll take whatever my insurance covers even if that ininofitself decreases my lifespan and causes me pain, hey actually, you just reminded me of a cure that “the public” doesn’t talk much about, when will euthanasia be legal? oh but that also is an abrupt end to a condition that could still be squeezed for profit, do you know your audience?
bold of you to assume that i have the means to self-administer, if one doesn’t have the means are they just not worthy of peace? or do they have to risk someone going to jail for murder for assisting?
You get what you pay for, in a sense. How would the public respond to a one-time cure being sold for more than the total lifetime cost of treatment? Not well, but the thing is that responding like that is effectively expressing a preference for the lifelong treatment.
Are you trying to be Devil’s Advocate for an imaginary scenario? WTF
It’s not an imaginary scenario. For example, look at Sovaldi, the $84,000 hepatitis C cure. That’s less than the total cost of long-term treatment but it didn’t exactly make Gilead popular.
sovaldi is priced like this because they can, once it goes off patent price will drop significantly, drop one zero at least. japanese price is 300$ because govt negotiated it and covers most of it (99%). price for egyptian govt is 900$
But does it ACTUALLY cost that much or do they charge that much because they can, like insulin?
It costs enough that it was featured at DEFCON this past year.
Four Thieves Vinegar Collective did a presentation where they made their own hep-c medication for a few hundred bucks + equipment.
Here is their website for those interested Link. But be warned, these guys very much have crossed a line in regards to IP law and general medical saftey practices. Governments do not care if your trying to make insulin or meth, they just see a mad scientist making drugs, and these nerds intend to make it a fight.
four thieves do not include any quality control, and plugging a jar to arduino does not grant you expertise needed. they rely heavily on intermediates access to which can be restricted pretty badly, and pricing of these is plain wrong because their scraper mixes up weights of amounts sold. frankly i doubt they made it at all, and any of these syntheses has great potential of killing people who try to do it. take from a dude who sits in medicinal chemistry for 30+ years now https://www.science.org/content/blog-post/anarchist-drugs-again
if you can get their procedures, i’d like to review them because the way they make these, i guarantee there will be incredible footguns included
Why not?
the other big thing is that for most with chronic illnesses, the public isn’t looking, nor do they care, if i had the money, i would try anything, but i hardly leave my house and i can’t afford to work, so i’ll take whatever my insurance covers even if that ininofitself decreases my lifespan and causes me pain, hey actually, you just reminded me of a cure that “the public” doesn’t talk much about, when will euthanasia be legal? oh but that also is an abrupt end to a condition that could still be squeezed for profit, do you know your audience?
It may not be legal, but when self-administered it’s not like you can be punished for it.
bold of you to assume that i have the means to self-administer, if one doesn’t have the means are they just not worthy of peace? or do they have to risk someone going to jail for murder for assisting?